UsherKids Australia

Usher syndrome is a rare genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction and up until now, there has been no support network in Australia dedicated to children.

UsherKids Australia is a resource and contact point for all families of children with Usher syndrome in Australia.

We also hope it will be a valuable tool for clinicians and support services in contact with children with Usher syndrome nationally. 

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